Last Updated:June 20, 2025, 13:09 IST
Managing sickle cell disease in kids requires regular monitoring, early intervention, and care from parents. An expert shares an easy guide for parents to help their kids.
Early diagnosis of sickle cell disease is crucial for effective management. (AI Generated Image)
Sickle cell disease is a lifelong condition that begins at birth, caused by a genetic mutation that transforms soft, round red blood cells into rigid, sickle-shaped ones. These misshapen cells can clog blood vessels and reduce oxygen flow throughout the body, putting children at greater risk for infections, pain episodes, and other serious complications. But with early diagnosis, consistent medical care, and informed, proactive parenting, kids with sickle cell can live healthier, fuller lives.
Dr. Rahul Naithani, Chief – Haematology, Oncology & Bone Marrow Transplant at Artemis Hospitals, Gurugram, shares what paediatricians want parents to understand about sickle cell disease – from symptoms to everyday care.
Early Diagnosis and Infection Prevention
Dr. Naithani emphasises the critical importance of early detection through newborn screening. For children with severe forms of sickle cell disease, beginning a daily dose of penicillin from birth through at least age five can reduce the risk of life-threatening infections, including pneumonia and meningitis, by as much as 84%.
Hydroxyurea: A Safe, Effective Preventive Medicine
Paediatricians recommend starting hydroxyurea as early as nine months of age, even before symptoms appear. The medication increases levels of fetal haemoglobin, which helps prevent painful sickle cell crises, reduces hospital visits, and significantly lowers the need for frequent blood transfusions.
Learning To Manage Pain, Temperature, And Hydration At Home
Dr Naithani notes that parents play a vital role in managing sickle cell disease at home and preventing crises from escalating. One of the most important steps is monitoring your child’s temperature – anything above 38°C should be treated as an urgent medical concern. Staying well-hydrated is equally essential; children should drink eight to ten glasses of water daily to help prevent red blood cells from sickling. Extreme temperatures can trigger pain episodes, so it’s best to avoid both very hot and very cold weather. If pain does occur, warm baths or heating pads can provide gentle relief.
Regular Comprehensive Care Visits
For children with SCD, regular care from both a primary care paediatrician and a haematologist at a specialised sickle cell centre is essential. Scheduling visits every three to twelve months allows for timely vaccinations, lab tests, and close monitoring of growth and development. These check-ups also help detect complications early, such as lung issues, increased stroke risk, or signs of organ damage.
With early intervention, consistent medical oversight, and proactive care at home, children can not only avoid serious complications but also gain the support they need to lead healthier, more active lives.
- Location :
Delhi, India, India
- First Published:
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